AANEM News Express

AANEM News Express

The American Neuromuscular Foundation is Seeking a Public Board Member

3/20/2020
 
The American Neuromuscular Foundation (ANF) seeks a Public Board Member to help the organization become a driving force in neuromuscular research.

The ANF is unique in that every dollar donated to the Foundation goes directly to fund research or educate researchers. The American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) pays all the administrative expenses. The AANEM recently transferred $3 million to the Foundation and uses the interest each year to fund research projects.

The ANF Public Board Member will be a member of the ANF Board and accomplish several goals for us:

1) Help the Board and the AANEM staff develop the strategic direction for the ANF.
2) Help develop strategies for revenue generation.
3) Serve as a creative thought leader on how to advance ANF’s relevance to, and engagement of, AANEM members and the public.
4) Assist in the identification of prospective donors and other potential public board members to participate in growing the Foundation.

The Public Member would carry out the fiduciary responsibilities required under MN nonprofit law of care, loyalty, and obedience.

The ideal Public Board Member will have extensive experience in the design and execution of multi-faceted revenue generation programs, including utilizing a wide varieties of outreach and communications channels, and the creation of major donor pipelines. Ideally, the Public Board member will have experience working closely with a Board of Directors to build visibility, impact, and financial resources toward organizational goals.

Attendance at a 1 day meeting in May in Chicago and a 1 day meeting in January in Minneapolis is required.

Other work will be carried out via email or telephone. Attendance may be requested in the fall at the AANEM annual meeting (locations vary – 2020 is October 6 in Orlando, FL). AANEM will cover all expenses related to meeting attendance and provide a $1500 honorarium per meeting attended.

Research Currently Funded:

• SMA - Spinal Muscular Atrophy
• ALS - Lou Gehrig’s disease
• Lambert Eaton Myasthenia
• Kennedy’s disease
• DNA sequencing to improve diagnosis of many neuromuscular diseases

There are hundreds of neuromuscular diseases effecting millions of people around the world. They range from life-ending diseases like ALS and SMA to those that cause life-long difficulties including well-known diseases such as muscular dystrophy to lesser-known diseases like Lambert Eaton Myasthenia Gravis, Charcot Marie Tooth, Guillain-Barré Syndrome, and those caused by chemotherapy and diabetes.

If interested in applying, send a cover letter, 3 references, and CV to the AANEM Executive Director, Shirlyn Adkins, JD, at sadkins@aanem.org by June 10, 2020.

We urge you to explore the American Neuromuscular Foundation website to learn more about what we do, and how we are already leading the global effort to cure neuromuscular disease!


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