The Muscular Dystrophy Coordinating Committee (MDCC), a federal advisory committee, is seeking nominations for an individual to serve as a non-federal member interested in providing the public and/or patient perspective. The MDCC coordinates activities amongst the National Institutes of Health (NIH) and other Federal health programs and activities relevant to all forms of muscular dystrophy. 


Working for Quality Care and Fair Reimbursement

The AANEM represents nearly 4,500 neuromuscular physicians and other health care providers. We monitor state and federal issues, create position statements to education law makers and insurance companies, fight against fraud and abuse, and advocate for quality patient care.

Position Statements

Use these position statements when communicating with legislators, payers, and other medical professionals.

Fraud & Abuse

Familiarize yourself with the avenues that can be taken to report suspected fraud or abuse. 

Action Center 

Participate in legislative action alerts and contact U.S. senators and representatives on important health policy issues.

Recent Advocacy News

APPLY NOW: Muscular Dystrophy Coordinating Committee

Second Annual Day on Capitol Hill

Washington Update

Action Alert

Congressional Update for AANEM Members – July 2015

Executive Director @ShirlynAdkins


Make sure your voice is heard.


Laboratory Accreditation


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